About the marham charity
Sponsor of rare skin and butterfly patients (eb)
The philanthropic sponsors are the non-political, nonprofit, and charitable institutional organs which, in compliance with all laws of the Islamic Republic of Iran, was officially held in 2017 with the participation of a group of benevolent people with goals: support for the provision of medicine and treatment, information and education, Supporting research and research, organizing and attracting support and supervision in the field of rare skin diseases, and in particular the disease (licorice).
Our mission
1. Protecting medicine and treatment
2. Information and education
3. Support research and research
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Mission, goals and short-term and long-term horizons of the Institute include:
1. In the section supporting the supply of medicine and treatment
Identify and file a case for related patients and track their assistance
– Providing and distributing drugs needed by patients covered
– facilitating access to health care for patients covered by health centers
2- In the Information and Education section
– Informing the institution’s services in a variety of ways, as a nonprofit and charitable reference agency for carrying out missions.
– Providing educational content for contact with rare skin diseases, patient care methods, nursing services to patients, treatment methods or healing of diseases, and …
– Conducting sessions and training courses for informing the institution’s programs, training related to rare skin diseases, and the conditions of the patients concerned: patients, their families, patients and medical staff
3- In the research section
– Definition and support of research and study projects on the prevention of disease, treatment and healing of rare skin diseases.
– Support the results of research projects related to the treatment of rare skin diseases
– Follow up to produce medicines and medical supplies for rare skin patients
4- In the field of organizing and gaining support
– Receiving licenses and certificates required and relevant from competent authorities such as the Ministry of Health, the Nursing Organization, the Food and Drug Organization, the Welfare Organization … to better track the goals and plans of the Institute
– Designing methods for attracting legal and legal persons participation in order to implement the goals and plans of the institute.
– Organizing and networking supporters for synergy and motivating supporters of the institution
– Organizing support with the aim of facilitating access to support, transparency, motivating supporters, classifying support types
– Attract participation of health centers, clinics, doctors, nurses and health activists to provide patients with favorable services.
5. Supervision
– Monitor the proper conduct of all processes for receiving and receiving support and assistance
– Monitor the provision of the correct and desirable services to patients covered
– Supervising the proper conduct of research projects and their implementation
– Monitor the proper conduct of the institution’s turnover in order to ensure the transparency of the processes and avoid lavishness and misconduct.
– Supervising the relations between the charities, supporters and the institution in order to respect them and maintain the status of the institution.
– Monitor all information and education programs for publishing the correct content
– Supervising the observance of legal and religious standards in all sections and processes of the institution